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Ron Johnson: “Adalarn has helped me and many others [with Duchenne…”

Featuring: Ron Johnson, Republican | U.S. Senate, Wisconsin

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Ron Johnson Calls To Extend Treatment For Duchenne Muscular Dystrophy Patients

Published | Video Starts at 12:09

Well, thank you Ben. I just want to read two additional stories here. One from a Duchenne patient, John Piasitino and he writes Adalarn has helped me and many others [with Duchenne nonsense mutations] to maintain independence and quality of life well into adulthood far beyond typical expectations. I'm now 32 years old. I lost ambulation at 22, began nighttime ventilation at age 30 and regained baseline respiratory function within one month. (12:09–12:18)

CLAIM

Asserts that Adalarn helps maintain independence and quality of life for Duchenne patients beyond typical expectations.

This is an excerpt from a raw transcript. The assertions have not been audited or verified. Tap the video to view the source footage and understand the context.


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